Note: This form will be sent to knowledgeable villager-volunteers belonging to our Parkinson’s Support Group, not to members of the CKV team. Please do not share protected health information on this platform. Thank you.
This Month's Featured Education
This month’s short 4-minute video, titled Dyskinesia and Parkinson’s Disease, is meant as a primer for our Parkinson’s Thursday presentation. It comes to us from The Michael J. Fox Foundation.
Rachel Dolhun, MD, movement disorder specialist, board-certified neurologist and Vice President of Medical Communications at The Michael J. Fox Foundation, discusses dyskinesia — the potential complication of long-term levodopa use combined with longer duration of Parkinson’s disease. The video outlines why dyskinesia occurs, how it is currently treated, and what research is ongoing to find better treatments.
Our November speaker, Dr. Laxman Bahroo, will address dyskinesia in more detail.
November 21 Meeting
Cross Keys Village is offering its Parkinson’s Thursday education and support groups, in the Encore Room (Harmony Ridge, 620 Harmony Drive, New Oxford PA), on the third Thursday of each month. The goal of the group is to empower people with Parkinson’s, care partners, family and friends by offering education on specific topics, followed by peer support. Parkinson’s Thursday is open to all at no cost, and no registration is required. The format of each meeting is as follows:
- 1:00-2:00pm – Educational seminar on a specific topic
- 2:00-2:15pm – Break
- 2:15-3:15pm – Peer support
Our November 21 guest is Laxman Bahroo, DO, Director of the Neurology Residency Program at MedStar Georgetown University Hospital in Washington DC. Dr. Bahroo’s presentation is titled More Days With Good On Time and covers the crucial concept of Off Time and dyskinesia. He will present information about one extended-release medication that has proven to increase On Time in some Parkinson’s patients.
Meet a Young Advocate
Arianna Spurlin, 17, is a senior at Dallas High School, a children’s book author, and the reigning Miss Pennsylvania’s Teen 2024. Her community service initiative, “Unshakeable,” focuses on spreading awareness, advocacy and education about Parkinson’s disease. Arianna’s grandfather was diagnosed with Parkinson’s disease. Her peers’ asking her questions about Parkinson’s disease when she was in middle school sparked her to author a book titled Pop with Parkinson’s, with the goal of educating children about the importance of acceptance.
She recently sat down for an interview with the Parkinson Foundation of Western PA. Isn’t it nice to know that a young person is pursuing such a worthy cause?
Living with Parkinson's
Parkinson’s Disease is a progressive motor system disorder that interferes with activities of daily living. There is no cure but rapid scientific progress is leading to greater understanding and new Parkinson’s medications, treatment and technology. Our goal on this page is to empower people with Parkinson’s – at Cross Keys Village and in the greater community – and their care partners, by offering cutting-edge PD management information.
In this short PBS interview titled Why Women With Parkinson’s Are Misdiagnosed, Dr. Soania Mathur, Parkinson’s disease advocate and family physician, talks about symptoms in women presenting differently than in men and how these differences can lead to late or wrong diagnoses.